When I was in hospital a couple of weeks ago the registrar asked me to see the surgeon Monday week ago and when I rang at 0900 to confirm was told "no appointment TODAY! It is October 29"...
OCTOBER 29???????
WTF!!!!!!
So I cracked the shits big time, and they made an appointment to see the surgeon the next Mon (which was now last Mon, the 17th).
(Did I mention being in hospital, at the end of August? The Sweetheart had to take me to A&E on a Monday as I had shoulder tip pain, agonising right side pain, sweatings. Was in a bed in the Hep Bil ward within 1.5 hours. A record in this public health Lib State Gov era of coronary patients on gurneys in corridors for days! Was in for three days, had lots of blood tests, few L of fluids, CT scan and ultrasound. There was a possibility of a recent bleed into cysts).
Saw the same surgeon as last year (whew!) who said that the cysts wouldn't cause this sort of swollen belly as they are *only* 8 and 6 cm. When I said that it was the same last year and after surgery I had gone back to being skinny he said "Lots of women lose weight after surgery", and I explained that I hadn't 'lost weight' but had GONE BACK TO BEING SKINNY!!!
I even showed him the size 10 (US 6) Spanx I wore to my nephew's wedding in May which now doesn't go half way across my 120cm belly, though does still fit across my back...*
He was very dismissive, and again said about 'losing weight'.
Said I need to have colonoscopy and gastroscopy to see what else is wrong that will be causing bloating. Because I may have 'ulcer or coeliac disease'. NOBODY IN MY FAMILY EVER HAD EITHER!!!
And said that there is 90 day wait to have the procedure.
I said "What about when I was here in July and signed a consent form for this? Haven't heard a thing". There was NO RECORD of me having seen anyone on July 9! Remember? I wrote of the doctor I saw whose name I wasn't allowed to know 'for privacy reasons'. Fortunately, I had handed the consent form to the front office so the slow cogs were in motion for me to have a colonoscopy and gastroscopy within 20 days! Haha, saved 70 days...??
He wants me to have another CT scan in 12 weeks. That is CHRISTMAS. And I am still feeling like crap.
I am so miserable, so tired, so much pain, I look like I am very pregnant, I KNOW I don't have an ulcer - even a symptomless one, and certainly not a genetic disease like coeliac and so I feel like am being duck-shoved.
And I feel like ANOTHER YEAR IS WASTED.
A least I am getting some knitting done...see my Ravelry list: http://www.ravelry.com/projects/AuntieJappa
*I actually bought new one cos I felt a hit icky about showing him underwear I had worn...!
2 comments:
Bugger! - I wish I could do something Aunty Jappa! Hugz - very gently!
Our service may be rubbish at times too but we can at least expect a second opinion and get it. It sounds to me like no one is listening to you. I really thought you would have been sorted out by now Jas. I am so sorry to hear that it is not the case. Keep stitching and keep sane.
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